Hemophilia Society of Maharastra was formed in 1992. It is a non profit organization registered under Societies Act, Bombay Public Trust Act amd FCR Act of Government of India. It is affliated to Hemophilia Federation New Delhi, which is a member of World Federation of Hemophilia, Montreal, Canada.
Our Aims
To identify and diagnose all the persons with hemophilia in this part of the country.
To educate and provide information about proper hemophilia care.
To make hemophilia treatment available at an affordable cost.
Our Achievements
Providing limited support to about 430 persons with hemophilia irrespective of their caste, creed or religion.
Making available life saving medicine. AHF at lowest price in the world and providing the same at no profit/subsidized/free basis to PWHs.
Play a vital role in life threatening situation and surgeries on persons with hemophilia.
Educating patients, training doctors on proper Hemophilia care, organizing workshop, conducting free check up camp every third sunday of month.
Run our own laboratory to diagnose hemophilia at the care center.
Run daily physiotherapy sessions at the center.
Established a trained team of doctors comprising of a physician, hematologist, orthopaedic surgeon, physiotherapist, technician and social worker. This team is one of the best in the country.
Successful implementation of a small pilot project given by Danida which helped us to locate and diagnose patients from rural areas in Pune District.
We are in the process of establishing a Hitech Laboratory and physiotherapy center opposite Lohade Hospital in our own premises.
Our Future Plans
To provide free physiotherapy under cover of AHF for 100 children with hemophilia under 14 years of age. This would help to correct and avoid disabilities.
To strengthen organizational set up which is presently run mostly by the volunteers.
To provide on demand treatment to all the patients registered with society.
To lobby with Government to support our activity by providing free AHF to poorest of poor patients.
